Cerebral+Palsy

** Cerebral Palsy: ** Cerebral palsy, often referred to as CP for short, is a condition that results from injury to the brain. The injury may occur before, during or shortly following birth. The word cerebral refers to the brain and palsy to difficulty in control of movement. Cerebral palsy is neither progressive nor communicable. Although it is not curable, medical and therapy intervention can help. Cerebral palsy, often referred to as CP for short, is a condition that results from injury to the brain. The injury may occur before, during or shortly following birth. The word cerebral refers to the brain and palsy to difficulty in control of movement. Cerebral palsy is neither progressive nor communicable. Although it is not curable, medical and therapy intervention can help. Depending on which part of the brain has been injured, different areas of the body will be involved or affected. The symptoms can vary greatly. For instance one or more of the following areas can be involved: general movement, walking, vision, hearing, speech, or learning. -KKI ** Disability Specific Information ** __ Websites: __ Cerebral Palsy Information Page; national Institute of Neurological Disorders and Stroke (NINDS) []

U.S. Department of Health and Human Services: National Guideline Clearing House Practice parameter: diagnostic assessment of the child with cerebral palsy: Report of the QU []

Cerebral Palsy and Special Needs Children's Organization. Help, Support and Information about Cerebral Palsy- 4MyChild []

United Cerebral Palsy: Home Page []

__ Books and Articles __ // Handling the Yo //// ung Child with Cerebral Palsy at Home – // Ideas on appropriate therapies and helping the child with Cerebral Palsy towards achieving his or her potential for independence in movement and functional activities. Finnie, Nancie. (1997). //Handling the young child with cerebral palsy at home//. Oxford: Butterworth Heinemann. // Caring for Children with Cerebral Palsy- // Based on the caregiving approach developed at the Cerebral Palsy Program at The Children's Hospital of Philadelphia and Children's Seashore House, this daily-use handbook draws on the experience of pediatricians and orthopedic surgeons as well as physical and occupational therapists, speech-language pathologists, social workers, educators, and administrators. It presents a conceptual framework for care delivery and emphasizes goals for development and competency in family and community settings. An in-depth, practical resource, it is a must for physicians, nurses, therapists, educators, social workers, home visitors, and families who want to make sound, collaborative caregiving decisions Dormans, John, & Pellegrino, Louis. (1998). Caring for children with cerebral palsy. Baltimore: Paul H Brookes.

// Cerebral Palsy – // A brief overview of what CP is, related problems to CP, focusing on Speech and Language by Dr. Mariana Newton Newton, Mariana. (1977). //Cerebral palsy//. Lincoln, Nebraska: Cliffs Notes.

// Cerebral Palsy- // A book discussing the role of the multi-dimensional team of professionals working with individuals with Cerebral Palsy. The book also focuses on the communication barriers commonly encountered. Mecham, Merlin. (1996). Cerebral Palsy. Austin, Texas: Pro-ed.

// Cerebral Palsy- // This book deals with management of communication disorders associated with CP. Hardy, James. (1983). Cerebral Palsy. Englewood Cliffs New Jersey: Prentice-Hall Inc.

Cerebral Palsy- A book focusing on rehabilitation and the benefits of using rehab. Keats, Sidney. (1965). Cerebral palsy. Springfield, Illinois: Bannerstone House.

** Education and Services ** Maryland Disability Law Center. (2008). [|//Special Education Rights: A Handbook for Maryland Families and Professionals (PDF format)//] // 2008 edition // <span style="color: #19d622; font-family: 'Comic Sans MS'; font-size: 10pt; line-height: normal; margin: 0in 0in 0pt 0.5in;">a 62 page handbook designed as a guide for helping families navigate the special education system and IEP process. Includes sample forms and letters. []

<span style="color: #19d622; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">There are many options for therapies; contact your insurance/ get a referral from a doctor to a therapist in your area. Some local groups and therapies are:

** Physical Therapy and Aqua Therapy ** · Baltimore Sports Rehabilitation and Physical Therapy <span style="color: #19d622; font-family: 'Comic Sans MS'; font-style: normal; line-height: normal; margin: 0in 0in 0pt 1in; text-indent: -0.25in;">[|www.baltimoresportsrehab.com] · The Orthopedic Center <span style="color: #19d622; font-family: 'Comic Sans MS'; font-size: 10pt; font-style: normal; line-height: normal; margin: 0in 0in 0pt 0.5in; text-indent: 0.5in;">[|www.theorthopediccenter.net] · The Water’s Edge <span style="color: #19d622; font-family: 'Comic Sans MS'; font-size: 10pt; font-style: normal; line-height: normal; margin: 0in 0in 0pt 1in;">http://www.thewatersedgemd.com/ · Chesapeake Physical and Aqua Therapy <span style="color: #19d622; font-family: 'Comic Sans MS'; font-size: 10pt; font-style: normal; line-height: normal; margin: 0in 0in 0pt 1in;">[|www.chesapeakept.com] ** Speech Therapy ** · Kennedy Krieger Institute <span style="color: #19d622; font-family: 'Comic Sans MS'; font-size: 10pt; font-style: normal; line-height: normal; margin: 0in 0in 0pt 1in;">[] ** Occupational Therapy ** · Kennedy Krieger Institute <span style="color: #19d622; font-family: 'Comic Sans MS'; font-size: 10pt; font-style: normal; line-height: normal; margin: 0in 0in 0pt 1in;">[] ** Hippo Therapy/Therapeutic Horse Riding ** · Maryland Therapeutic Riding <span style="color: #19d622; font-family: 'Comic Sans MS'; font-size: 10pt; font-style: normal; line-height: normal; margin: 0in 0in 0pt 1in;">[|www.horsesthatheal.org] · Talbot Special Riders <span style="color: #19d622; font-family: 'Comic Sans MS'; font-size: 10pt; font-style: normal; line-height: normal; margin: 0in 0in 0pt 1in;">[|www.talbotspecialriders.com] ** Local Support Groups and Educational Conferences along with **** + **** Funding and Legal Advocacy: **

· **United Cerebral Palsy** <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 22.5pt; tab-stops: 49.5pt; tabstops: 49.5pt;">Local Chapters will provide support group information - ** Cerebral Palsy Support Group of Howard County ** <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">Phone; (410) 992-4599 (410) 992-4599 Dan Dotson <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">Meets the last Thursday of the month. - ** UCP of Central Maryland ** <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">11350 McCormick Road <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">Suite 1100 <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">Hunt Valley, MD 21031 <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">Phone: (410) 484-4540 (410) 484-4540 <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">TTY: (800) 451-2452 <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">Fax: (410) 484-1807 <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">E-mail: info@ucp-cm.org <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">[|**http://www.ucp-cm.org**] - ** Cerebral Palsy ** <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">Mitzi Bernard, Executive Director <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">United Cerebral Palsy of Southern MD <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">49 Old Solomons Island Rd., Suite 301 <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">Annapolis, MD 21401 <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">(410) 897-9545 (410) 897-9545 <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">E-mail: somducp@earthlink.net <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 1in; tab-stops: 49.5pt; tabstops: 49.5pt;">Web: [|www.sitestar.com/ucp/]

<span style="line-height: normal; margin: 0in 0in 0pt 22.5pt; tabstops: list .5in left 49.5pt; text-indent: -0.25in;"> · ** PARENT TRAINING & INFORMATION PROJECT ** <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 22.5pt; tab-stops: 49.5pt; tabstops: 49.5pt;">Josie Thomas, Director <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 22.5pt; tab-stops: 49.5pt; tabstops: 49.5pt;">Parents Place of MD, Inc. <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 22.5pt; tab-stops: 49.5pt; tabstops: 49.5pt;">7484 Candlewood Road, Suite S <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 22.5pt; tab-stops: 49.5pt; tabstops: 49.5pt;">Hanover, MD 21076 <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 22.5pt; tab-stops: 49.5pt; tabstops: 49.5pt;">(410) 859-5300 (410) 859-5300 (V/TTY) <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 22.5pt; tab-stops: 49.5pt; tabstops: 49.5pt;">E-mail: parplace@AOL.com <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 22.5pt; tab-stops: 49.5pt; tabstops: 49.5pt;">Web: [|www.somerset.net/ParentsPlace]

· + ** Benefits InfoSource ** <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 0.25in; text-indent: -0.25in;">(888)-838-1776/(301) 587-4137 <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 0.25in; text-indent: -0.25in;">A project of Independence Now, Inc., serving people living in Montgomery and Prince George's Counties, the Eastern Shore and Southern and Western Maryland providing services to persons receiving disability benefits from Social Security who want to explore their options regarding employment and benefits planning.

· + ** The Benefits Resource Center ** <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 0.25in; text-indent: -0.25in;">(888) 560-2221 (888) 560-2221 <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 0.25in; text-indent: -0.25in;">A project of Making Choices for Independent Living (MCIL), assisting individuals with disabilities in Baltimore City, Anne Arundel, Baltimore, Carroll, Harford, and Howard Counties.

· ** Children's Medical Services (CMS) Program ** <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 0.25in; text-indent: -0.25in;">Phone: (410) 767-1818 (410) 767-1818 ; (800) 456-8900 (800) 456-8900 <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 0.25in; text-indent: -0.25in;">The Children's Medical Services Program is a joint federal/state/local program which assists families in planning and obtaining specialty medical and rehabilitative care for children who have chronic illnesses or disabling conditions which interfere with normal growth and development. The program has both medical and financial eligibility requirements.

· + [|**Maryland Developmental Disabilities Council Legislative Advocacy Support Fund**] <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 0.25in; text-indent: -0.25in;">This special fund provides financial assistance to individuals with developmental disabilities and their family members in their efforts to educate and inform legislators and other policymakers on issues affecting the inclusion, independence, self-determination, and self-advocacy of Marylanders with developmental disabilities. The Legislative Advocacy Support Fund will reimburse costs directly related to participation in legislative activities for which there are no other sources of support. The Fund is not intended to replace other sources of assistance. Persons interested in applying for assistance from this Fund need to complete the Legislative Advocacy Support Fund Request Form available on the Councils website: [|www.md-council.org]. From the home page click on Announcements. Or call the Council at (410) 333-3688 (410) 333-3688 or (800) 305-6441 (800) 305-6441 extension 1 for assistance. Requests should be made in advance whenever possible.

<span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 0.25in; text-indent: -0.25in;">Approved costs will be reimbursed upon submission of original receipts documenting that the service was provided. You must also include the Federal ID Number of any service provider or Social Security Number of any individual being reimbursed. Reimbursement cannot be made without this information and complete documentation. Please allow 4-6 weeks for <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 0.25in;">reimbursement.

· + **The Financial Planning Association** <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 0.25in; text-indent: -0.25in;">Phone: 800-282-7526 800-282-7526 <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 0.25in; text-indent: -0.25in;">The financial planning association will provide a list of certified financial planners in your area, along with information on selecting a planner.

· + **Social Security Administration** <span style="color: #17375e; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt 0.25in; text-indent: -0.25in;">Contains information about services, benefits and publications from the Social Security Administration, including SSI, SSDI, work incentives, food stamp program and other topics. Many families lose Supplemental Security Income (SSI) disability benefits for children because they delay filing for them. If you think your child might be eligible for SSI, apply as soon as possible. The SSA's new info packet, "How to Apply for SSI Benefits for Children", contains a fact sheet about SSI for children with disabilities, a pamphlet that discusses the medical and non-medical requirements for qualifying for SSI childhood disability benefits, a pamphlet about SSI, a report form, and authorization for release forms. The packet can be obtained from Social Security field offices and teleservice centers. For more info, contact the SSA Publication Distribution Center at 800/772-1213 800/772-1213 or visit their website by clicking on the heading above.

** Recreational and Community Based Resources ** = Special Olympics Maryland- Baltimore County- Become An Athlete = <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">Let me win, but if I cannot win, let me be brave in the attempt. -Special Olympics Oath <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">[] Contact Katie Shannon at 443-831-6208 443-831-6208 or kshannon@somd.org.

** The Arc of Baltimore ** <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">[|http://www.arcofmaltimore.org] 410-296-2272 <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">7215 York Road Baltimore MD 21212

** UPC of Central Maryland Calendar ** <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">Events Hosted Monthly by the UPC <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">[]

** Very Special Camps ** <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">Provides a list of some local Maryland summer camps for individuals with special needs. <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">[] <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">-or- ** Summer Camps throughout Maryland ** <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">Autism Speaks provides a list of summer camps for all individuals with disabilities throughout the Maryland area. <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">[]

** Maryland Therapeutic Riding (MTR) ** <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">Mailing Address: MTR PO BOX 6477 Annapolis, MD 21401 <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">Farm Location: Arden Farms 1141 Sunrise Beach Road Crownsville, MD 21032 <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">Phone Numbers: <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">Program 410-923-1187 <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">Development 410-923-6800 <span style="color: #29ff29; font-family: 'Comic Sans MS'; font-size: 12pt; line-height: normal; margin: 0in 0in 0pt;">“Uses the healing power of our horses, farm, volunteers, and professional staff to help individuals seeking physical mental, spiritual, or emotional healing.”